Skip to main content

Remote Diagnoses and "Advocacy"

"Did you know Bill Gates and Tim Burton are probably on the spectrum?"

Can we please stop such nonsense? I wouldn't want anyone to claim to know my various mental and physical conditions, much less publicize such assumptions. We have no right to try to associate someone else with an advocacy position, as if having some celebrity with a medical
condition is essential to "the cause" (meaning fundraising, usually).

The more people try to associate famous people with autism, ADHD, seizure disorders, and a host of other conditions, the more I hope I'm just a intellectual oddity with some creativity -- no disorders, injuries, or special conditions involved. I think attempts to find indicators for various conditions is getting so ridiculous that every geek, techie, goth, cyberpunk, loner, poet will be classified as disabled. Not that I'm currently all of the preceding, but the checklists presented for "the spectrum" is getting absurd.

Simplifying autism spectrum disorders to the point anyone and everyone can be classified as autistic works against what I consider legitimate research and social advocacy. This same problem occurred with ADHD. Not everyone with a high IQ is disabled. Not every entrepreneur is disabled.

Having different motivations and interests than the majority of Americans is not a disability. We need to appreciate that. And we need to stop trying to find "role models" as if those with official diagnoses aren't impressive enough. A lot of successful people with autism should be role models.

Remote diagnoses are probably flawed. They certainly shouldn't be taken too seriously.

Comments

Popular posts from this blog

Autistic Burnout

Summer demands a lot of social energy, especially for parents. For autistics, the never-ending social calendar of summer can cause serious autistic burnout. Host C. S. Wyatt discusses his need to find a balance between social demands and self-care. Check out this episode!

ABA and NARTH

There must be something better out there. I'm not sure what, but the more I interview functional adults with autism who received ABA-based or similar therapies, the more I know there must be a better approach. The problem is, I have no idea what that "better approach" is. I'm not a psychologist. I'm a language arts and autism specialist. My research is on how autistic students learn to master written communication (which doesn't really mean "written" in all cases). I am not a therapist. I am not a counselor. But there has to be a better way to help students and young children. I am not suggesting all ABA-based therapies in use today are bad. I sincerely believe ABA must be revised, researched, and ideally all connections to anything Lovaas did forgotten to history. I'd even like to see whatever evolution occurs to have a name other than "ABA-based therapy." The history and associations are that troubling. So, understand I'm ca...

More on Autism Puzzle Piece Logos, Symbols, Ribbons

I joined Twitter on the first day of 2011 ( @autisticme ). I also joined a Twibe (seriously?) and registered with WeFollow.com to learn more about what autism-related Twitter feeds might exist. Within a few days, I was already observing a familiar debate. In fact, it the debate I described in the single most-viewed blog entry of The Autistic Me, which dates back to 2008 (see " Logos, Symbols, and Ribbons "). Various "Aspie Advocates" are still protesting the puzzle piece. I'm sure they will be protesting the puzzle piece next year, in five years, and a decade from now. The "neurodiverstiy" (ND) movement doesn't like the puzzle piece. (Everyone's brain is different: neurological diversity is a fact of life.) Honestly, I don't care for the puzzle piece either. I've written and said that I find it personally off-putting. If I am a puzzle, I'm not more or less of a puzzle than most human beings. I'm told, "Oh, no, it is autism ...