Skip to main content

Quality of Life Indicators

Autism Advocate, the monthly magazine of the Autism Society of America, includes a list of "QoL Indicators" (Quality of Life) developed by Dr. Ted Carr. The list of issues ASA seeks to address:

  1. School inclusion.
  2. Social connections (friendships, relationships).
  3. Health and well-being.
  4. Academic success.
  5. Autonomy.
  6. Supported and independent living.
  7. Supported and independent employment.
  8. Subjective well-being.
  9. Recreation and leisure.

I don't quite understand why some of these are separated, since they are closely related. For example, I assume "school inclusion" and "academic success" should be together. When you can have academic success via independent living, part of education is socialization.

I'm also not clear on the "autonomy" point. We are all interdependent in a society, so this must mean the ability to choose what one will or will not do.

Which items on this list are most important to you? Why? What items would you add or remove from this list?

Personally, I think any list over six items is too long. Research has shown we focus best on seven or fewer items. I would merge 1 and 4, drop 5 to emphasize 6 and 7.

Maybe no one has any comments, but it seems like this could help people focus on particular concerns.

Comments

Popular posts from this blog

Autistic Burnout

Summer demands a lot of social energy, especially for parents. For autistics, the never-ending social calendar of summer can cause serious autistic burnout. Host C. S. Wyatt discusses his need to find a balance between social demands and self-care. Check out this episode!

Autism, Asperger's, and IQ

"Aren't people with Asperger's more likely to be geniuses? Isn't genius related to autism?" A university student asked this in a course I am teaching. The class discussion was covering neurological differences, free will, and the nature versus nurture debate. The textbook for the course includes sidebars on the brain and behavior throughout chapters on ethics and morality. This student was asking a question reflecting media portrayals of autism spectrum disorders, social skills difficulties, and genius. I did not address this question from a personal perspective in class, but I have when speaking to groups of parents, educators, and caregivers. Some of the reasons these questions arise, as mentioned above, are media portrayals and news coverage of autism. Examples include: Television shows with gifted characters either identified with or assumed to have autistic traits: Alphas, Big Bang Theory, Bones, Rizzoli and Isles, Touch, and others. Some would include...

Alex Plank and Jenny Palmiotto discuss "An Eventing with Ezra"

The film Ezra follows Max Bernal (Bobby Cannavale), a stand-up comedian living with his father (Robert De Niro), while struggling to co-parent his autistic son Ezra (introducing William Fitzgerald) with his ex-wife (Rose Byrne). Alex Plank, Associate Producer Alex Plank is a trailblazing autistic self-advocate and a pioneering leader in the autistic human rights. As an associate producer of the critically acclaimed movie 'Ezra,' Alex has made significant strides in both behind-the-scenes and on-camera roles. He is a champion of authentic and humanistic representation of autistic individuals in the film industry. With a deep commitment to challenging ableism, Alex advocates for a world where autistic people are valued and respected. This commitment extends to a broader condemnation of ableism in all its forms, with a specific focus on dismantling the barriers within the film industry that marginalize autistic talent and narratives. Jenny Palmiotto – Founder of Love & Aut...